American Brain Foundation

Legal & Privacy Policies

Privacy Policy

Our Commitment to Privacy
The American Brain Foundation (“ABF”) respects the privacy of its donors and users of (“Web site”). The American Brain Foundation Privacy Policy (“Policy”) explains our privacy practices. Because your privacy is important to us, we provide you with notice and choices about the use of your information and how we contact you. By visiting ABF at or, you accept the practices described in this Policy.

Use of Cookies
We use cookies, small files that are sent to your Web browser and stored on your computer's hard drive, to improve your Web site experience. The cookie is used to speed up your access to the Web site and the information you wish to see, but it does not contain any personal information. The majority of Web browsers accept cookies, but the “help” menu on your browser should give you options for preventing, accepting, or receiving notice of new cookies. However, please be aware that if you block cookies, some Web site functionality may be lost.

Data Collection
We collect two types of information:

1. Standard Web server traffic pattern information. General traffic, site usage, browser information and length of stay information is collected and stored in log files. This type of information is shared externally only on an aggregated basis.

2. Personal information. We do not collect personally identifiable information from you unless you provide it to us voluntarily and knowingly. If you personalize a Web site, volunteer, request information, register for an ABF program/event, or donate, for example, we may collect the following personal information: first and last name, street address, city, state, zip code, telephone number, email address, and subject of inquiry. Such personal information may be collected in the following contexts:

Personalized Website: If you choose to customize the Web site to your needs by becoming a registered Web user (if offered by ABF), we retain the preferences you select so that you will not have to reenter the information each time you access our Web site. These preferences may include requests for email, news, information on specific neurologic diseases, language preferences, and interest group selections (patient, medical professional, volunteer). You can access your profile by entering your user name and password each time you use the Web site.

Registration: If you register to participate in an ABF event or hold your own FUNraiser on behalf of the ABF, using our event registration site or paper registration forms, we may ask if you or a loved one is living with a brain/neurologic disorder. This information is useful for event purposes.

Donations or Orders: If you choose to donate to the ABF or order an ABF publication, standard credit card information (card number, card type, expiration date) is collected through a third party payer, Blackbaud. The Web site is secured by 128 bit encryption. If you choose to donate to our organization, we maintain a record of your contribution.

Requests: If you submit an online request for complimentary ABF publications such as free brochures and patient DVDs, or submit a question through a “contact us” query, we may have to gather additional information from you to respond to your request. Such information will vary with the request but often includes name, shipping address, telephone number, and email address.

Public Forums: If you choose to participate in a chat room, discussion board, or another public forum that we make available to our users, please remember that any information that you disclose in these areas becomes public information. You should exercise caution when deciding whether or not to disclose your personal information.

Data Use
We limit the use of information provided to us on our Web site and paper forms to the following:

Internal Use

1. If you do not make a service request, donation, or otherwise identify yourself, we will have no personally identifiable information about you. We will only use aggregate information derived, in part, from your use of our Web site to improve our Web site and our service to you.

2. If you provide personal information, we may enter your name into our constituent database and contact you in order to:

a)    Complete voluntary surveys seeking feedback for quality and service improvement purposes.

b)    Supply you with information including neurologic related health news, ABF programs, events and services.

c)    Request voluntary time or monetary contributions to ABF.

3. We collect the email addresses of those who communicate with us by email or otherwise provide their email address to us. Inquiries may be forwarded to the appropriate ABF department for response and may be entered into our constituent database. If your name is entered into the database, we may contact you (see (2) above).

External Use 
Your personal information is privileged and confidential and will not be shared or released to any organization or business entity other than those affiliated with or working in conjunction with ABF as indicated below:

1. We occasionally hire other companies to provide limited services on our behalf. We will only provide those companies the information they need to deliver the service and prohibit them from using that information for any other purpose.

2. From time to time, we may have relationships with companies that conduct charitable sales promotions and commercial co-ventures/collaborations that support us in our mission and activities. If you provide us with your mailing address, we may pass your contact information to these companies so that they may ask you if you are interested in receiving their services. Your choice to use their services will benefit us; the amount of money we receive from these entities as a result of your participation is disclosed at the time you are contacted about the service. You are under no obligation to respond and the companies are restricted from using your contact information for any other purpose.

Your Options
We respect your privacy and allow you to restrict internal and external sharing of your personal information. We recognize that you may wish to limit the ways in which we contact you, or you may wish not to be contact at all, and therefore we offer the following options:

1. Please remove me from your contact list.
2. Please do not contact me with solicitations for donations to ABF.
3. Please indicate which contact methods ABF may use:

a)    Telephone 

b)    Email 

c)    Do not share my information outside the ABF

To inform us of any desired restrictions, please click on the following link: If you contact us with an opt-out request, all reasonable efforts will be taken to ensure that you will not receive any of the selected communications from us in the future. If you do not wish to opt out at this time, you may do so at a later date should you so desire.

If you opt back into a specific service, you will receive communication in that manner; regardless of your overall opt out selections. These services may include newsletter subscriptions or email communication by asking a question using “Contact Us.”

Upon request, we will provide you with the information we maintain about you so that you may request corrections. This information will be sent via postal mail, which we believe is the most secure method of communication. Please contact us by email at, or in writing at:

Security and Privacy Requests 
American Brain Foundation 
201 Chicago Ave. 
Minneapolis, MN 55415

To protect your privacy and security, we will take reasonable steps to verify your identity before providing information or making corrections.

Data Security
We are committed to protecting the security of your personal information and to honoring your choices for its intended use. To prevent unauthorized access, maintain data accuracy, and ensure the correct use of information, we strive to maintain physical, electronic, and administrative safeguards.

ABF does not store financial data such as credit card information. We process your financial transactions securely using a third party payer, Blackbaud. 

Inside ABF, non-financial data is stored in password-controlled servers. Our staff is educated about the importance of safeguarding your information and we are committed to holding them accountable for protecting your confidentiality. However, such precautions do not guarantee that our Web site is invulnerable to all security breaks. ABF makes no warranty, guarantee, or representation that the use of our Web site is protected from viruses, security threats, or other vulnerabilities and that your information will always be secure.

Whenever ABF permits an external third party to access personally-identifiable information, appropriate procedures are followed to help ensure that the information is used only for authorized purposes and by authorized persons in a manner consistent with the choices ABF constituents have made under this Policy, and that the security, integrity and privacy of the information is maintained. While ABF will employ procedures to help ensure that your information is only used for authorized purposes as described above, we cannot make any guarantees with respect to the actions or policies of such third parties.

External Links 
This Web site may contain links to other sites. We do not disclose personably identifiable information to those operating linked sites and we are not responsible for their privacy practices. Links to other sites do not imply an endorsement of the materials or policies on those web sites. You should read the privacy policies of each site you visit to determine what information that site may be collecting about you.

Contact Us 
This privacy statement will be updated periodically and posted on our Web site. It applies only to ABF on-line and donor practices and other contexts described herein. References to "American Brain Foundation", "ABF", "we", "us" and "our" are references to American Brain Foundation and its affiliates, staff and volunteers. We reserve the right to change this policy at any time by posting revisions. You agree to review the Privacy Policy each time you use our Web site so that you are aware of any modifications. By accessing or using the Web site or otherwise engaging with the ABF as described in “Data Collection” above, you agree to be bound by all of the terms and conditions of the ABF Privacy Policy as posted at the time of your access or use. If you have any questions about our policy or our compliance, you may send us an email at, or in writing at:

Security and Privacy Requests
American Brain Foundation 
201 Chicago Ave. 
Minneapolis, MN 55415

Policy Updates
We reserve the right to update this policy at any time without notice.

Approved on June 15, 2012, by the American Brain Foundation Board of Directors. Updated June 3, 2015.